Founded in 1993 in Rochester, NY, the Huntington Study Group (HSG) is a not-for-profit organization comprised of the world’s first and largest collaborative network of experts in Huntington disease. The mission of the HSG is seeking treatments that make a difference for those affected by HD. With more than 700 credentialed HD experts at 132 HSG credentialed research sites worldwide, the HSG is a leader in conducting clinical trials for HD. The HSG also offers educational services like CME4HD™ for healthcare professionals and care providers on treating patients with HD.

myHDstudy Platform Overview
2:11
myHDstudy Platform Overview
HSG 2024 - Register Now!
0:28
HSG 2024 - Register Now!
All Good Things - Erin Paterson
33:17
All Good Things - Erin Paterson
HD Insights of the Year with Dr. Daniel Claassen
31:38
HD Insights of the Year with Dr. Daniel Claassen
HSG 2023 - Celebrating 30 Years
1:20
HSG 2023 - Celebrating 30 Years
HSG 2023 - Sandra’s Story
1:40
HSG 2023 - Sandra’s Story
HSG 2022 Staff Video
1:20
HSG 2022 Staff Video
PROOF-HD: About PROOF-HD (Ongoing)
3:58
PROOF-HD: About PROOF-HD (Ongoing)
Who is the HSG? - Andrew Feigin, Elise Kayson, and Shari Kinel
24:44
Who is the HSG? - Andrew Feigin, Elise Kayson, and Shari Kinel
Peter Como Symposium Platform Presentation - Sara Picó
26:00
Peter Como Symposium Platform Presentation - Sara Picó
Stand up and JOIN-HD!
32:23
Stand up and JOIN-HD!
HSG 2021 Keynote: Jean Paul Vonsattel
1:05:21
HSG 2021 Keynote: Jean Paul Vonsattel
Meet Victor Sung and Sam Frank
39:57
Meet Victor Sung and Sam Frank
DNA Repair in Huntington’s Disease - Lesley Jones
34:46
DNA Repair in Huntington’s Disease - Lesley Jones
Meet Jim Gusella
32:50
Meet Jim Gusella
HSG 2021 Inspirational Speaker - Alexandra Drane
46:23
HSG 2021 Inspirational Speaker - Alexandra Drane
Genetic Counseling for Predictive HD Testing: Expanding Access - Kate Foreman
30:54
Genetic Counseling for Predictive HD Testing: Expanding Access - Kate Foreman
HSG Working Group Presentations - Nora Fritz, Lori Quinn, and Jamie Adams
30:21
HSG Working Group Presentations - Nora Fritz, Lori Quinn, and Jamie Adams
Huntington Disease: A Complementary & Integrative Approach - Danny Bega
42:21
Huntington Disease: A Complementary & Integrative Approach - Danny Bega
HD Innovators Forum with Live Q&A Panel - Neubase, NeuExcell, Ophidian, PTC, and Triplet
1:58:36
HD Innovators Forum with Live Q&A Panel - Neubase, NeuExcell, Ophidian, PTC, and Triplet
Physiotherapy: Results from the PACE-HD Study - Monica Busse-Morris and Lori Quinn
30:27
Physiotherapy: Results from the PACE-HD Study - Monica Busse-Morris and Lori Quinn
Can We Modify HD with Alfy? - Ai Yamamoto
30:11
Can We Modify HD with Alfy? - Ai Yamamoto
HD 101 with Andrew Duker
38:48
HD 101 with Andrew Duker
New and Upcoming Research in Therapeutics - Jee Bang and Wenzhen Duan
40:40
New and Upcoming Research in Therapeutics - Jee Bang and Wenzhen Duan
HSG Study Participant Interview - December 2021
31:10
HSG Study Participant Interview - December 2021
Demystifying Behavior in Huntington Disease - Katherine McDonell
40:39
Demystifying Behavior in Huntington Disease - Katherine McDonell
HSG Studies: vUHDRS® - Samuel Frank and Jody Goldstein
15:12
HSG Studies: vUHDRS® - Samuel Frank and Jody Goldstein
Q&A: What’s on Your Mind - Martha Nance, Andrew Duker, Jee Bang, and Jaime Hatcher-Martin
15:07
Q&A: What’s on Your Mind - Martha Nance, Andrew Duker, Jee Bang, and Jaime Hatcher-Martin
Huntington Disease: What's New and What's Not - Matt Bower
40:23
Huntington Disease: What's New and What's Not - Matt Bower
Postmortem Brain Imaging in Juvenile Huntington Disease - Tim Koscik
31:50
Postmortem Brain Imaging in Juvenile Huntington Disease - Tim Koscik