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C Difficile infection, fecal impion, blood. Its a jolly holiday with Daniel.. as we watch Mary Poppins for the 12th time. As I write this it is Sunday night at 7:00pm and I have no idea what is going on. Daniel has blood in his stool. So the doctors are talking. Im kind of stir crazy, but trying to be patient. Hospitalization is not glamorous. As a matter of f, Im so exhausted I want to cry.\r
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We ually agreed to be discharged Sunday night at 8:00pm. Which was pretty late to be discharging him, but whatever. I wanted to get out of there because there is so much sickness there.\r
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My middle son, Daniel John Hasselberger was born on November 22, 1997, with a rare brain deformity called Polymicrogyria. The deformity happened due to a virus called CMV, or cytomegalovirus. He has seizures, respiratory problems, can only eat by g tube, is in a wheelchair, can not speak, and has had countless surgeries and hospitalizations over his 17 years. We are a family of 5 from Sandy Hook, CT and this is our journey. \r
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Every day is full of new things that we dont expect. I am Julie, Daniels Mom. I left my full time career as an HR Director 11 years ago because Daniel needed me. The struggle, the sacrifices, the sibling love, and miracle after miracle.\r
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Why did I create this channel? For support, to help other families dealing with the same diagnosis, to help me cope with depression and isolation, etc. Please leave comments and help us grow and develop this channel. Life is incredible, and I want to share our story. \r
Julie Hasselberger \r
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Subscirbe to this channel\r
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My blog site about life with Daniel\r
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twitter @jhasselberger \r
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Instagram jhasselberger\r
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Please watch: HANGING BEACHBALL \r
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